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My heart has been struggling and pondering many things. Yet as we walk into this season of thanksgiving I find myself struggling to understand yet again the hurt and suffering that loss brings. The deep feeling of not truly knowing the right words or actions to take.

Every year since Gracelyn was diagnosed with Schizencephaly. Death of a child with Rare disorders has passed back into the arms of God. I find peace in that, bit also find that it make me also hurt in a way words can’t express. I find myself not able to freely talk about the struggles and victories of my own sweet girl.

I want to have the right words. To be able to be with those I call friends in a deeper way. I want to be able to be a blessing and help others. Most of all this Thanksgiving I want to be able to share our journey again. The Good and ugly.