Our Sweet girl Gracelyn has had many medical struggles over her 10 years. Being born with Schizencephaly has made it hard. See Gracelyn seemed healthy at birth. Her development slowly got more behind. The doctor sent us to neurology to see what is going on. Her MRI came back and confirmed that what the Doctor felt was much worse then we all could have thought. The doctor told me that Gracelyn would be lucky if she made it to the age of 3 years old…eat by herself…walk by herself.
Joshua and I noticed her body was jerking from time to time. She had just turned 1 year old. We were waiting to establish care with a new neurologist, since we had just moved to Colorado from Texas. I called the neurologist to see if we could get in early. They were not able to get us early. But the Doctor called in orders to have an EEG done before the appointment. The day came for Gracelyn’s neurologist appointment came and we were ready for answers. The Dr came in went over her EEG. That day changed our lives. As we as a family have learn more about Gracelyns seizures, we have also are learning everyday how the seizure are changing her. The challenge we face as her parents is to make the right choices in her medication. Gracelyn has failed many medications. The options for medication are becoming harder and harder. Joshua and I have always said that God gave us Gracelyn to care for, when He is ready to bring her home we now we did are best. We will be sad and not ready. But knowing that she is healed and not struggling with seizures. Gracelyn shows the world that she is more then her diagnosis.
