Wow! Today is the day that we take Gracelyn for another MRI. The need to find the answer to the increase of iritiablity, extreme sleepiness and now we have noticed that the control in her left eye has gotten extremely worse. Yesterday during feeding therapy her eye would redirect its self it a upward glare and not bink. This happened 5x in 25 minute.
Seeing my baby this way is not easy. I personally feel that pushing for answers is where we are. Please pray we get answers and momma bear does not have to come out.