Spring Break 2017

This week has been packed with Family and fun.  Good and bad.  Let’s start with the bad.  We got more news on the parts for our Lift.  Still no parts.  Know they are on Back order till mid April.  This means mommy need super natural strength or a miracle.   Now for the Good news. […]

Mayham would not Trade it

This morning was like every other morning.  Controlled mayham is the real description.  We have started having Ava wake to an alarm.  She is 9 yr old.  Yet moments before that I was late in the let our night nurse go home. Grils asleep I let the side of Gracelyns bed down.  This morning was […]

Brave Warrior Princess…..update 

Gracelyn has now taking on the name Brave Warrior Princess.  If she did not have enough stuff going on medically.  The last two months have been hard on everyone that cares for her.  She has had many issues with breathing, multiple viruses and fevers.   Gracelyn has also had very low white blood count.  Which […]